Informação relevante

Individuals Advanced read

Patient data ownership: Who owns your health?

This article answers two questions from the perspective of United Kingdom law and policy: (i) is health information property? and (ii) should it be? We argue that special features of health information make it unsuitable for conferral of property rights without an extensive system of data-specific rules, like those that govern intellectual property.

Business & Government Intermediate read

Britain tamed Big Tech and nobody noticed

The Age Appropriate Design Code – now the Children’s Code – has caused huge global changes. Not that tech platforms want to admit it.

Business & Government Advanced read

Data: A new direction (UK Report, 146 pages)

For those interested in the evolution of UK data legislation, this report was published by the government today.

Individuals Simple read

UK's ICO Calls For Browser-Level Controls To Fix 'Cookie Fatigue'

Last month, UK digital minister Oliver Dowden took aim at what he dubbed an "endless" parade of cookie pop-ups -- suggesting the government is eyeing watering down consent requirements around web tracking as ministers consider how to diverge from European Union data protection standards, post-Brexit. Today the UK's outgoing information commissioner, Elizabeth Denham, stepped into the fray to urge her counterparts in G7 countries to knock heads together and coalesce around the idea of letting web users express generic privacy preferences at the browser/app/device level, rather than having to do it through pop-ups every time they visit a website.

Individuals Simple read

UK To Overhaul Privacy Rules in Post-Brexit Departure From GDPR

Britain will attempt to move away from European data protection regulations as it overhauls its privacy rules after Brexit, the government has announced.

[Simple] NHS data strategy: Patients will get more control over data

NHS patients in England will get greater control over their health and social care data under plans set out by the government. Critics fear data could be misused but the health secretary says a new strategy will make it more secure.

Estratégia de dados do NHS: os pacientes terão mais controles sobre dados

Os pacientes do sistema público de saúde inglês (NHS) terão maior controle sobre seus dados de saúde e assistência social, de acordo com o novo plano divupelo governo. Críticos temem que dados sejam mal utilizados mas o Secretário de Saúde diz que uma nova estratégia tornará a situação mais segura.

[Simple] The UK Has a Plan for a New ‘Pandemic Radar’ System

Disease surveillance schemes to catch the next rising virus already exist—they’re just not communicating with each other.

O Reino Unido tem planos para um novo sistema de "Radar Pandêmico"

Os esquemas de detecção de doenças para deter os vírus do futuro já existem - eles só não estão se comunicando entre si.

[Simple] Matt Hancock has quietly told your GP to hand over your health data

If you live in England, all your encounters with your GP – information about your physical, mental and sexual health – could be ‘sold’ to third parties.

Matt Hancock silenciosamente pediu para que seu médico entregue seus dados de saúde

Caso você more na Inglaterra, todas as informações sobre sua saúde física, mental e sexual discutidas com um Clínico Geral do sistema de saúde pública (NHS) podem ser 'vendidas' para terceiros

[Simple] England to launch digital vaccine passport

The NHS app launched on Monday May 17th will be used to demonstrate COVID-19 vaccination status. However, guidance on the UK government website says: “There are not many countries that currently accept proof of vaccination. So for the time being, most people will still need to follow other rules when travelling abroad – like getting a negative pre-departure test.”

A Inglaterra lançará passaporte de vacina digital

O aplicativo do Serviço Nacional de Saúde (NHS, sigla em inglês) lançado na segunda-feira 17 de maio, será usado para demonstrar o status de vacinação contra a COVID-19 dos usuários. No entanto, orientações no site do governo do Reino Unido afirmam: "Não existem muitos países que aceitem prova de vacinação hoje em dia. Então, por enquanto, a maior parte das pessoas ainda deverá seguir outras regras quando viajando em países estrangeiros - como apresentar um teste negativo antes de embarcar."

O Reino Unido está secretamente testando uma ferramenta controversa de espionagem online

O Investigatory Powers Act, ou Snooper’s Charter, foi introduzido em 2016. Atualmente, uma das ferramentas de vigilância online mais controversa está sendo testada por grandes empresas de internet.

[Intermediate] The UK is secretly testing a controversial web snooping tool

The Investigatory Powers Act, or Snooper’s Charter, was introduced in 2016. Now one of its most contentious surveillance tools is being secretly trialled by internet firms.

[Simple] What if people controlled their own health data?

The NHS in 2030 project imagines a world where citizens are able to easily share their health data in a standardised format and in real-time with studies operating on a large or a small-scale.

[Simples] E se as pessoas controlassem seus próprios dados de saúde?

O projeto NHS in 2030 imagina um mundo onde os cidadãos possam compartilhar facilmente seus dados de saúde em um formato padronizado e em tempo real com estudos operando em grande ou pequena escala.

Unfounded Closing of Adtech Complaint

The UK’s data watchdog is facing a legal challenge after it took the decision to quietly close a complaint against the adtech industry’s high velocity background trading of personal data. The legal challenge was reported earlier by Politico.

Encerramento infundado de reclamação Adtech

O cão de guarda de dados do Reino Unido está enfrentando um desafio legal depois que tomou a decisão de encerrar discretamente uma reclamação contra o comércio de dados pessoais em alta velocidade do setor de adtech. O desafio legal foi relatado anteriormente pelo Politico.

Save our NHS

What is your personal connection with your healthcare service & the professionals that work within it?

UK Parliament: The Right to Privacy (Article 8) and the Digital Revolution inquiry

The UK Parliament's Joint Committee on Human Rights published in the Third Report of Session 2019 'The Right to Privacy (Article 8) and the Digital Revolution'

Lib Dems profile every voter in UK

The Liberal Democrats are profiling every voter in the country by scoring their political preferences out of 100 This includes which party they will vote for in the next election and whether they are a Remainer or Leaver.

UK Gov request for user data from government website sparks alarm

Privacy campaigners question urgency of move and motives of PM and Dominic Cummings

Data Portability Sandbox Reports

This document is the final report on Data Mobility: the data portability growth opportunity for the UK economy, carried out for the Department for Digital, Culture, Media and Sport (DCMS) by Ctrl-Shift.

Smart data: putting consumers in control of their data and enabling innovation

We are seeking views on proposals to allow the creation of innovative data-driven services, for the benefit of consumers.

Update report into adtech and real time bidding

An interesting development shared by the UK Information Commissioner.

Blinding Identity Taxonomy

The UK Parliament's Human Rights Committee on protecting the privacy of personally identifiable information.


Perguntas feitas

[Avançado] Chamada de financiamento: transferindo fundos de confiança da teoria para a prática

A Data Trusts Initiative é um programa interdisciplinar que busca pesquisas na interface de tecnologia, política e legislação para entender melhor o papel que os Data Trusts podem desempenhar na abordagem dos desafios da governança de dados no século XXI. Como parte de seu trabalho, a Iniciativa - que é apoiada por uma doação da Fundação Patrick J McGovern - está oferecendo bolsas de pesquisa para projetos que podem ajudar a preencher a lacuna entre as discussões sobre o potencial das relações de confiança de dados e sua aplicação prática.

[Advanced] Funding call: moving data trusts from theory to practice

The Data Trusts Initiative is an interdisciplinary programme that pursues research at the interface of technology, policy and the law to better understand the role data trusts can play in addressing the challenges of data governance in the 21st century. As part of its work, the Initiative – which is supported by a donation from the Patrick J McGovern Foundation – is offering research grants for projects that can help bridge the gap between discussions about the potential of data trusts and their practical application.