NHS patients in England will get greater control over their health and social care data under plans set out by the government. Critics fear data could be misused but the health secretary says a new strategy will make it more secure.
Disease surveillance schemes to catch the next rising virus already exist—they’re just not communicating with each other.
If you live in England, all your encounters with your GP – information about your physical, mental and sexual health – could be ‘sold’ to third parties.
The NHS app launched on Monday May 17th will be used to demonstrate COVID-19 vaccination status. However, guidance on the UK government website says: “There are not many countries that currently accept proof of vaccination. So for the time being, most people will still need to follow other rules when travelling abroad – like getting a negative pre-departure test.”
The Investigatory Powers Act, or Snooper’s Charter, was introduced in 2016. Now one of its most contentious surveillance tools is being secretly trialled by internet firms.
The NHS in 2030 project imagines a world where citizens are able to easily share their health data in a standardised format and in real-time with studies operating on a large or a small-scale.
The UK’s data watchdog is facing a legal challenge after it took the decision to quietly close a complaint against the adtech industry’s high velocity background trading of personal data. The legal challenge was reported earlier by Politico.
What is your personal connection with your healthcare service & the professionals that work within it?
The UK Parliament's Joint Committee on Human Rights published in the Third Report of Session 2019 'The Right to Privacy (Article 8) and the Digital Revolution'
The Liberal Democrats are profiling every voter in the country by scoring their political preferences out of 100 This includes which party they will vote for in the next election and whether they are a Remainer or Leaver.
Privacy campaigners question urgency of move and motives of PM and Dominic Cummings
This document is the final report on Data Mobility: the data portability growth opportunity for the UK economy, carried out for the Department for Digital, Culture, Media and Sport (DCMS) by Ctrl-Shift.
We are seeking views on proposals to allow the creation of innovative data-driven services, for the benefit of consumers.
An interesting development shared by the UK Information Commissioner.
The UK Parliament's Human Rights Committee on protecting the privacy of personally identifiable information.
The Data Trusts Initiative is an interdisciplinary programme that pursues research at the interface of technology, policy and the law to better understand the role data trusts can play in addressing the challenges of data governance in the 21st century. As part of its work, the Initiative – which is supported by a donation from the Patrick J McGovern Foundation – is offering research grants for projects that can help bridge the gap between discussions about the potential of data trusts and their practical application.
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