In this blog post, newly appointed Deputy general manager Sille Sepp explains the main developments for MyData Global in 2022 – Collective sensemaking and channels for impact, Strengthening the MyData brand, Renovating the infrastructure of MyData Global, and Changes in the staff and leadership team.

Nesse post em nosso blog, a recém nomeada vice Gerente Geral Sille Sepp explica os principais desenvolvimentos do MyData Global em 2022 - a formação de sentidos coletiva e os canais para impacto; o fortalecimento da marca MyData; a renovação da infraestrutura do MyData Global e as mudanças no pessoal e na equipe de liderança.

O que poderia dar errado quando dois dos mais repressivos regimes da região do Oriente Médio-Norte da África começarem a coletar uma quantidade gigantesca de dados? Aqui estão apenas algumas das ameaças que as populações sofrem:

Coleta e processamento massivos de dados Efeitos negativos e ameaças ao livre arbítrio - modificação do nosso comportamento Ameaças às vidas e ao sustento das pessoas Ameaças à segurança cibernética Não há motivo para aceitar a vigilância onipresente como a norma, seja no Oriente Médio, no Norte da África ou em qualquer outro lugar do mundo!

What could go possibly wrong with two of the most repressive regimes in the MENA region collecting a staggering amount of data? Here are just a few of the threats people face:

• Mass collection and processing of personal data
  
• Chilling effects and threats to free will — modification of our behavior
  
• Threats to people’s lives and livelihoods
  
• Threats to cybersecurity

There’s no reason to accept ubiquitous surveillance as the norm, in the MENA region or anywhere else!

O relatório identifica os desafios e riscos éticos com o uso da inteligência artificial da saúde, seis princípios consensuais para garantir que a IA funcione para o benefício público de todos os países. Ele também contém um conjunto de recomendações que podem garantir que a governança da inteligência artificial para a saúde maximize a promessa da tecnologia e responsabiliza e responsabiliza todas as partes interessadas - no setor público e privado - pelos trabalhadores da saúde que confiarão nessas tecnologias e pelas comunidades e indivíduos cuja saúde será afetada por seu uso.

The report identifies the ethical challenges and risks with the use of artificial intelligence of health, six consensus principles to ensure AI works to the public benefit of all countries. It also contains a set of recommendations that can ensure the governance of artificial intelligence for health maximizes the promise of the technology and holds all stakeholders – in the public and private sector – accountable and responsive to the healthcare workers who will rely on these technologies and the communities and individuals whose health will be affected by its use.

We’ve newly released the State of MyData 2021 publication which presents a snapshot of the pathway towards human-centric approach to personal data, highlighting the journey of interoperability, human-centered #design and #cities as key pioneers for MyData as key themes of 2021.

Nós recentemente publicamos o documento State of MyData 2021 que apresenta um retrato do caminho rumo a uma abordagem dos dados pessoais centrada em seres humanos, destacando a jornada da interoperabilidade, o #design centrado em humanos e as #cidades como pioneiras chave para o MyData como os principais temas de 2021.

O uso de reconhecimento facial para vigilância, ou de algoritmos que manipulem o comportamento humano, serão banidos de acordo com propostas de regulações da UE sobre a inteligência artificial.

As gigantes da tecnologia desenvolveram um novo vocabulário para utilizarem quando querem garantir ao público de que elas se importam profundamente com o desenvolvimento responsável de inteligências artificiais - mas elas também querem garantir que esse público não investigue muito o tema. Aqui está um guia interno para decifrar a linguagem utilizada por essas empresas e confrontar suas suposições e valores.

The tech giants have developed a new vocabulary to use when they want to assure the public that they care deeply about developing AI responsibly—but want to make sure they don’t invite too much scrutiny. Here’s an insider’s guide to decoding their language and challenging the assumptions and values baked in.

The use of facial recognition for surveillance, or algorithms that manipulate human behaviour, will be banned under proposed EU regulations on artificial intelligence.

Cada um de nós está tentando convencer alguém de alguma coisa em determinados momentos. Aparentemente, quando se está escolhendo argumentos, menos (alta qualidade) é mais. 

Each of us is trying to convince somebody on something at times. Turns out that when choosing your arguments, less (high quality) is more.

What drives society's understanding of right and wrong? In this thought-provoking talk, futurist Juan Enriquez offers a historical outlook on what humanity once deemed acceptable -- from human sacrifice and public executions to slavery and eating meat -- and makes a surprising case that exponential advances in technology leads to more ethical behavior.

On December 2, after a protracted disagreement over the release of a research paper, Google forced out its ethical AI co-lead, Timnit Gebru. The paper was on the risks of large language models, AI models trained on staggering amounts of text data, which are a line of research core to Google’s business. Gebru, a leading voice in AI ethics, was one of the only Black women at Google Research.

Joanna van der Merwe e Hannah escreveram uma postagem no blog sobre as principais percepções coletadas em sua sessão na Conferência MyData Online 2020: riscos, desafios e soluções para parcerias público-privadas baseadas em dados.

Joanna van der Merwe and Hannah wrote a blogpost about the main insights gathered from their session at the MyData Online 2020 Conference: Risks, challenges and solutions for data-driven public-private partnerships.

Em 2 de dezembro, depois de um prolongado desacordo sobre o lançamento de um artigo de pesquisa, o Google expulsou seu co-líder ético de IA, Timnit Gebru. O artigo tratava dos riscos de grandes modelos de linguagem, modelos de IA treinados em enormes quantidades de dados de texto, que são uma linha de pesquisa central para os negócios do Google. Gebru, uma voz importante na ética da IA, foi uma das únicas mulheres negras no Google Research.

Israel is considered a world leader in medical data, which is partly why it has received priority access to the COVID-19 vaccines. Experts agree that the Pfizer deal offers reasonable protection of citizens’ personal data - but some parts of the deal prompt questions that need answering.

Israel é considerado um líder mundial em dados médicos, o que é em parte o motivo pelo qual recebeu acesso prioritário às vacinas COVID-19. Os especialistas concordam que o acordo da Pfizer oferece proteção razoável aos dados pessoais dos cidadãos - mas algumas partes do acordo levantam questões que precisam de resposta.

Cingapura admitiu que os dados de seu programa de rastreamento de contatos Covid também podem ser acessados ​​pela polícia, revertendo as garantias de privacidade anteriores. Tal abordagem irá desgastar a confiança do público nas respostas de saúde futuras e, portanto, impedir sua eficácia.

Singapore has admitted data from its Covid contact tracing programme can also be accessed by police, reversing earlier privacy assurances. Such an approach will erode public trust in future health responses and therefore impede their efficacy.

A great summary of the Nine Key Themes one of our invited presenters at MyData 2020 Onlince Conference Sangeet Paul Choudary have been working on during this year.

Um ótimo resumo dos nove temas-chave que um de nossos apresentadores convidados na Conferência Online MyData 2020 em que Sangeet Paul Choudary tem trabalhado durante este ano.

On Thursday, December 10, 2020, the GovLab hosted a panel discussion on “Data Collaboration in the Age of COVID-19” at the MyData Conference 2020. Facilitated by Stefaan Verhulst (Co-Founder and Chief R&D at The GovLab), panelists Kelly Jin (City of New York), Claudia Juench (Cloudera Foundation), Dave Greene (Microsoft), and JoAnn Stonier (Mastercard) discussed ways the COVID-19 response could inform efforts to foster cross-sector data reuse in a responsible, systematic, and sustainable way.

Na quinta-feira, 10 de dezembro de 2020, o GovLab organizou um painel de discussão sobre "Colaboração de dados na era do COVID-19" na MyData Conference 2020. Facilitado por Stefaan Verhulst (cofundador e chefe de P&D do GovLab), os painelistas Kelly Jin (cidade de Nova York), Claudia Juench (Fundação Cloudera), Dave Greene (Microsoft) e JoAnn Stonier (Mastercard) discutiram maneiras como a resposta ao COVID-19 poderia informar os esforços para promover a reutilização de dados intersetoriais de forma responsável, sistemática e sustentável.

À medida que as plataformas continuam a crescer, o controle sobre o comércio de bens e serviços está mudando dos países para as plataformas digitais. E, à medida que o comércio, a mão-de-obra e o dinheiro se tornam cada vez mais digitalizados e trocados em plataformas, os países precisam repensar suas posições no fluxo global desses bens. Para obter uma vantagem competitiva, os países precisam buscar cada vez mais uma estratégia de plataforma.

As platforms continue to grow, control over the trade in goods and services is shifting from countries to digital platforms. And as trade, labor, and money grow increasingly digitized and are exchanged on platforms, countries need to rethink their positions in the global flow of these goods. If they are to gain a competitive advantage, countries need to increasingly pursue a platform strategy.

A new English version of the MyData white paper was published! The last white paper in English was released 5years ago, and it was about time to package all the everevolving MyData's thinking and doing into a new paper.
Congratulations to everybody who contributed to this work, and thank you Viivi Lähteenoja and the Ministry of Transport and Communications of Finland for making this happen.

MyData白書の新しい英語版が公開されました。 最後の英語の白書は5年前にリリースされたです。進化するMyDataの考えと行動をすべて新しい白書にまとめるときがきました。

この作業に貢献してくださった皆さん、おめでとうございます。これを実現してくださったViivi Lähteenoja氏とフィンランド運輸通信省に感謝します。

Uma nova versão em inglês do white paper MyData foi publicada! O último white paper em inglês foi lançado há 5 anos, e era hora de agrupar todas as idéias e ações em constante evolução do MyData em um novo jornal. Parabéns a todos que contribuíram para este trabalho, e obrigado Viivi Lähteenoja e o Ministério dos Transportes e Comunicações da Finlândia por fazerem isso acontecer.

Educational courses and content to inform, equip and inspire you or your organization to use data as part of your everyday language.

Cursos e conteúdos educacionais para informar, equipar e inspirar você ou sua organização a usar dados como parte do seu idioma cotidiano.

We interviewed 41 people, from privacy experts to everyday people, to understand their views on privacy and the ways that different policies could impact their work (via MIT Media Lab).

Entrevistamos 41 pessoas, de especialistas em privacidade a pessoas comuns, para entender seus pontos de vista sobre privacidade e de que formas as diferentes políticas podem impactar seu trabalho. (via MIT Media Lab)

The MyData Webinar about Personal APIs (presented by Lal Chandran from iGrant.io) moderated bei Ansku is now up at https://mydata.org/webinars and in MyData Global’s Youtube channel.

The MyData webinar about Interoperability of Health Data (presented by Paul Knowles and Erwan Médy) moderated bei Ansku Tuomainen is now up at https://mydata.org/webinars and in MyData Global’s Youtube channel.

Latest MyData webinar about Identity (presented by Phil Windley and Andres Kütt) in the Digital Era is now up at mydata.org/webinars and in MyData Global’s Youtube channel.

This week a call took place about the MyData Thought Leadership and how reshaping the Thematic Groups can work. Be sure to check out the slide-deck!

Digital technologies introduce change rapidly and their potential for impact comes with responsibility. Introducing a dedicated agile practice for considering the consequences of technology within an iterative development cycle.

The strategy of MyData Org is that the organisation won’t start doing citizen campaigns or direct activities targeted towards “regular” people in the coming 3 years but rather focus on the professionals.

The MyData Webinar about Digital Wallets and Vaults is now available at https://mydata.org/webinars/ and in our YouTube channel. Presenters are Marie-Jose Hoefmans from Schluss and Robert Mitwicki demonstrating Minerva.

The MyData Webinar about Consent Mechanisms is now available at https://mydata.org/webinars/ and in our YouTube channel. Presenters are Jim Pasquale from the Kantara Initiative and Crt Ahlin from Datafund.

We conducted tens of community interviews in the past half a year with the main goal to understand the MyData community better. We’ve now finalised with the analysis, and results are available at https://mydata-global.org/understanding-community-2019.

Currently, the MyData Global Meetup account has 12 groups with 1,144 members and held 46 events in 2019. The overall cost for this was EUR 1,317. Costwise this is not much but there is a discussion to switch to alternatives (allevents.in, eventbrite.com, or attending.io) because of low attendance despite high sign-ups. It is planned to take a decision in the next Community call on Wed Dec 18, 2019.

Let me introduce you the MVP version of the long-awaited Case Library that we’d like to test now with the MyData community members.

This is a network we could look into. @Iain added: That group is led by Mei Lin Fung (based in California) and is already engaged with Project VRM and Me2B.

Provides an overview of the key privacy and data protection laws and regulations across the globe.

The #2 MyData Webinar about Design is now available at https://mydata.org/webinars/ and in our YouTube channel.

This presentation is a great visualization of the different types of all current hubs.

If you missed the AGM but would like to hear / see the presentations and discussions about motions put up at the GM, you can view the meeting in this video.

The very first MyData Webinar took place on October 25th, 2019 and covered A New Governance and Me2B Alliance, that both touch upon the topic of building a trustworthy personal data ecosystem.

We're starting a series of webinars this fall, with the aim to present different initiatives, projects and services that are contributing to MyData's mission in empowering individuals by improving their right to self-determination regarding their personal data.
The webinars will take place regularly on 2nd and 4th Fridays of the month. First one is already coming up next week on 25th Oct, and will present A New Governance's and Me2B Alliance's work on building a more trustworthy data ecosystem.

The whole web is occupied by centralized services… Well… not entirely. One small village of indomitable Free Software lovers still holds out against the invaders.

The CPDP2020 Call for Papers is addressed to all researchers who wish to present their papers at the next Computers, Privacy and Data Protection conference. CPDP is an annual three-day conference devoted to privacy and data protection. The 13th edition of CPDP will be held on 22-24 January 2020 in Brussels. Whilst a number of speakers are specifically invited by the conference, several slots remain open to application through an annual call for papers.

Join us for an amazing MyData after-hours experience: Welcome Gathering, Dinners, Sauna, Afterpart. Eat, Greet - Repeat!

Digitisation and artificial intelligence, data and the platform economy are key to accelerating European productivity and growth in the global context. Europe could build a human-centric model for a data economy based on the fair use of data, according to a policy brief released by the Lisbon Council and Sitra.

This initiative is a bit particular, with a focus of designing a governance model for a way how to translate GDPR requirements into technical standards. Your contributions on figuring out the governance model are more than welcome - we’ve organised a channel #anewgovernance where you can stay up to date of the developments.

AI is increasingly being embedded in our lives, supplementing our pervasive use of digital technologies. But this is being accompanied by disquiet over problematic and dangerous implementations of AI, or indeed, even AI itself deciding to do dangerous and problematic actions, especially in fields such as the military, medicine and criminal justice.

An overview about the membership fee sharing for the individual hubs. Read more about Financial guidelines for Initiatives here.

This story is the first of a series on how civil society organisations and activists are using the GDPR (and similar data protection legislation) to advance rights and strengthen their work.

The third annual ACM FAT Conference brings together researchers and practitioners interested in fairness, accountability, and transparency in socio-technical systems. FAT 2020 has 5 submission tracks reflecting its disciplinary diversity, each with a separate call for papers: #1 - Computer Science; #2 - Law; #3 - Social Sciences and Humanities; #4 - Practice and Experience; #5 - Education. Full paper submission deadline: Aug 22, 2019; Notification date: Oct 31, 2019; Conference: Jan 27-30, 2020

For the millions of refugees fleeing conflict and persecution every year, access to information about their rights and control over their personal data are crucial for their ability to assess risk and navigate the asylum process. While asylum seekers are required to provide significant amounts of personal information on their journey to safety, they are rarely fully informed of their data rights by UN agencies or local border control and law enforcement staff tasked with obtaining and processing their personal information. Despite recent improvements in data protection mechanisms in the European Union, refugees’ informed consent for the collection and use of their personal data is rarely sought.

Sille has put together some tips & tricks that you can use in the preparation of your sessions for MyData 2019 conference.