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Noteworthy Information

Why Google’s Move into Patient Information Is a Big Deal

We are obviously at the beginning of what will likely be a long, contentious, and vital debate over how to manage personal health information in the digital age... patients have an undeniable right to privacy and control over their personal health data.

Why scam calls seem to be on the rise - Wait, There’s More (Audio: 24:41min)

Host Tamara Khandaker is joined in studio by John Wunderlich, a privacy and security consultant, to discuss the uptick in phone call scams, and if there’s any way to actually stop them.

Fighting for digital equity, in Canada and beyond

Equitable access to the internet is a communication right. As the Alliance for Affordable Internet (A4AI) points out, not only is the internet a pathway to information, communication, and economic opportunity, it is increasingly necessary to access basic commercial and public services. As more of the world becomes digital, those unable to connect will inevitably be left behind.

The Open Application Network

Solving the unintended consequences of platform economies. The OAN is a public infrastructure that creates a new design space for Open Applications.

It’s Time to Start Talking About Co-managed Data

As we reach the end of another decade, I've been reflecting on the changes over the last ten years in my areas of interest - customer management as my day job, and personal data management for individuals as my hobby horse.

The Open Food Repo

The Open Food Repo is a freely and openly accessible database of barcoded food products sold in Switzerland. It is run by the Digital Epidemiology Lab at EPFL.

Case Library is online

Let me introduce you the MVP version of the long-awaited Case Library that we’d like to test now with the MyData community members.

I Took DNA Tests in the U.S. and China. The Results Concern Me

Privacy is big question, as governments seek access to DNA data.

2020 Democrats on who controls your data — and who’s at fault when it’s mishandled

Your quick rundown to US politics and data rights: Presidential candidates agree that americans should have more control over their data than they do now.

A glitch in diabetes monitors serves as a cautionary tale for health tech

Here’s the challenge for technology in health care: Success means that new tech also becomes too indispensable to fail. You can deal with Twitter being down, but not the loss of a device that keeps your kid’s blood sugar at safe levels.

Finland’s first MyData operator

In the cover of biggest Finnish newspaper today Vastuu group announces that they are MyData operator.

Perpetual Debt in the Silicon Savannah

Cautionary tale around the language of empowerment: Kenya's poor were among the first to benefit from digital lending apps; now they call it slavery.

Project Exograph

In Japan you can get € 1.800 per month if you give access to all your data 24/7. It is an experiment and lasts only one month, started November 25t. The only mention for requirements is that you stay in the house 8+ hours per day.

Business & Government Simple read

Behind the One-Way Mirror: A Deep Dive Into the Technology of Corporate Surveillance

It's time to shed light on the technical methods and business practices behind third-party tracking. For journalists, policy makers, and concerned consumers, this paper will demystify the fundamentals of third-party tracking, explain the scope of the problem, and suggest ways for users and legislation to fight back against the status quo.


Questions Asked

Open Invention Network

Viivi had an interesting chat with a person from the Open Invention Network who hopes that MyData Global would engage with them. They have a mechanism in place for becoming a “friend organisation”, which is an idea we’ve been kicking around at MyData Global as well. Question to open source folks here: what do you make of the initiative?

Comments for “User Account as a Service”

I'm planning to write an updated version of this Medium post, so I would appreciate any questions, comments, suggestions or any other views from the community.


Tools

Individuals Simple read

WikiTribune

New FB killer from Wikipedia founder Jimmy Wales.

UBDI: Universal Basic Data Income

A company I have been advising (UBDI.com) is coming out of Beta and made their announcement today. It is built on top of digi.me whom most of you know. As I’ve been talking to quite a few of the members here about various things being built on top of digi.me in their various stages, it’s great to see some of it going live and visible.

Cliqz

A privacy by design browser and search engine.


MyData Internals

This week the “2019-Board“ met for the last time and slides and notes are available. The Design Themantic Group was officially approved but please note that the leadership team has decided to pause accepting new Hubs and Groups until the Governance issues are clarified. There was also a Facebook posting this week that spured an interesting conversation about data ownership and the missing stance of MyData on this topic.

And on a meta-level: I started to use the :newspaper: emoji to track those posts I include in the Weekly Digest.


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