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Informação relevante

Data Trusts: Ethics, Architecture and Governance for Trustworthy Data Stewardship

A data trust works within the law to provide ethical, architecturaland governancesupport for trustworthy data processing.

MyData vs COVID-19

A blog post on MyData vs COVID-19 describing who we are, what we do and why people should join the efforts now!

Beyond a Human Rights-based approach to AI Governance

This paper discusses the establishment of a governance framework to secure the development and deployment of “good AI”, and describes the quest for a morally objective compass to steer it.

Cluster Headaches - Data to become pain free (Video: 8:00min)

An patient expermiment to setup our own community research and try to find out how effective our treatments are, based on data we collect ourselves.


Perguntas feitas

Cost for Developing a Personal Data Store

I have been asked to find out what the cost would be to hire developers to create a personal data store.


Ferramentas

Quantified Flu

We’ve shared this today with Open Humans.

Zoom

Dataethics.eu about Zoom: “Many are using Zoom, a US start-up with no specific privacy-focus, and a very complex privacy policy, and thus we can not recommend it.”


MyData Interno

Board & Steering Group

  • Jogi created a SWOT analysis concerning “MyData Global surviving the pandemic”
  • Teemu shared his thoughts on the bigger picture of COVID19 affecting the work of MyData Global
  • Teemu made a video briefing in preparation for the March Board meeting
  • Teemu started a document about “MyData Global in the times of COVID19” that summarizes actions and objectives
  • The March 2020 Board Meeting took place on Thursday, March 26th with the memo available here

Community


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