Weekly Digest: March 27th, 2020

MyData Weekly Digest for March 27th, 2020

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Noteworthy Information

4 posts

Data Trusts: Ethics, Architecture and Governance for Trustworthy Data Stewardship

A data trust works within the law to provide ethical, architecturaland governancesupport for trustworthy data processing.

posted on 2020-03-21 by John W. on MyData Slack #trust

MyData vs COVID-19

A blog post on MyData vs COVID-19 describing who we are, what we do and why people should join the efforts now!

posted on 2020-03-27 by Karolina Mackiewicz on MyData Slack #coronavirus #general

Beyond a Human Rights-based approach to AI Governance

This paper discusses the establishment of a governance framework to secure the development and deployment of “good AI”, and describes the quest for a morally objective compass to steer it.

posted on 2020-03-27 by Viivi on MyData Slack #ai #ethics

Cluster Headaches - Data to become pain free (Video: 8:00min)

An patient expermiment to setup our own community research and try to find out how effective our treatments are, based on data we collect ourselves.

posted on 2020-03-27 by nobism - Rogier Koning on MyData Slack #health-data

Questions Asked

1 post

Cost for Developing a Personal Data Store

I have been asked to find out what the cost would be to hire developers to create a personal data store.

posted on 2020-03-24 by Chris on MyData Slack #business #personal-data-store

Tools

2 Entries

Quantified Flu

We’ve shared this today with Open Humans.

posted on 2020-03-25 by madprime on MyData Slack #health-data (open website of this Tool)

Zoom

Dataethics.eu about Zoom: “Many are using Zoom, a US start-up with no specific privacy-focus, and a very complex privacy policy, and thus we can not recommend it.”

posted on 2020-03-27 by Viivi on MyData Slack #communication (open website of this Tool)

MyData Internals

Board & Steering Group

Jogi created a SWOT analysis concerning “MyData Global surviving the pandemic”
Teemu shared his thoughts on the bigger picture of COVID19 affecting the work of MyData Global
Teemu made a video briefing in preparation for the March Board meeting
Teemu started a document about “MyData Global in the times of COVID19” that summarizes actions and objectives
The March 2020 Board Meeting took place on Thursday, March 26th with the memo available here

Community

Matthias De Bièvre posted a proposition for the working plan to define standards and answer EU calls as a first aNG project - which led to a very long thread on Separation of Concern and defining terms among other things
Karolina summarized the outcome of the first MyData vs Covid19 call
Sille reminded hub-leaders to provide the final feedback the internal regulations for Hubs, Unified membership first draft, and the draft doc of the Code of Conduct until March 31st.

Statistics

User:

1943 (67 new)

Slack Channels:

251 (31 monitored: ai-ethics, anewgovernance, board, cities, common_endpoints, community, community-meeting, decisions, design, done, economy, event-2020-europe, events-and-meetings, general, health-data, hub-initiators, identity, make-it-happen, media, my-ai, mydata-operators, mydata-presentations, policy, random, reading, startups, strategy, thank-you, tools, transparency, welcome)

Postings:

6214

People said Thank you:

17 thanked 30

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