Welcome to the MyData Weekly Digest, a news site dedicated to producing the best coverage from within the human centred approach in personal data management. It provides information retrieved mainly from the MyData Global Slack Channel since June 2019. Postings and comments are owned by the respective user stated with each entry. MyData is an idea and an alternative vision for ethical use of personal data. It’s also a movement and a community, and a global non-profit organisation. Read more here: mydata.org

OwnYourData and the MyData community share the same values for a just, sustainable and prosperous digital society. See the OwnYourData Mission Statement for more information, and please consider supporting the MyData movement. If you have any suggestions please don't hesitate to contact me at weekly-digest(at)ownyourdata.eu.


Noteworthy Information
Data Trusts: Ethics, Architecture and Governance for Trustworthy Data Stewardship

A data trust works within the law to provide ethical, architecturaland governancesupport for trustworthy data processing.

Cluster Headaches - Data to become pain free (Video: 8:00min)

An patient expermiment to setup our own community research and try to find out how effective our treatments are, based on data we collect ourselves.

MyData vs COVID-19

A blog post on MyData vs COVID-19 describing who we are, what we do and why people should join the efforts now!

Beyond a Human Rights-based approach to AI Governance

This paper discusses the establishment of a governance framework to secure the development and deployment of “good AI”, and describes the quest for a morally objective compass to steer it.


Questions Asked
Cost for Developing a Personal Data Store

I have been asked to find out what the cost would be to hire developers to create a personal data store.


Tools
Quantified Flu

We’ve shared this today with Open Humans.

Zoom

Dataethics.eu about Zoom: “Many are using Zoom, a US start-up with no specific privacy-focus, and a very complex privacy policy, and thus we can not recommend it.”


MyData Internals

Board & Steering Group

  • Jogi created a SWOT analysis concerning “MyData Global surviving the pandemic”
  • Teemu shared his thoughts on the bigger picture of COVID19 affecting the work of MyData Global
  • Teemu made a video briefing in preparation for the March Board meeting
  • Teemu started a document about “MyData Global in the times of COVID19” that summarizes actions and objectives
  • The March 2020 Board Meeting took place on Thursday, March 26th with the memo available here

Community


Upcoming Events
The following events are in the MyData calendar for next week:

Statistics
1943 (67 new)
251 (31 monitored: ai-ethics, anewgovernance, board, cities, common_endpoints, community, community-meeting, decisions, design, done, economy, event-2020-europe, events-and-meetings, general, health-data, hub-initiators, identity, make-it-happen, media, my-ai, mydata-operators, mydata-presentations, policy, random, reading, startups, strategy, thank-you, tools, transparency, welcome)
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