Welcome to the MyData Weekly Digest, a news site dedicated to producing the best coverage from within the human centred approach in personal data management. It provides information retrieved mainly from the MyData Global Slack Channel since June 2019. Postings and comments are owned by the respective user stated with each entry. MyData is an idea and an alternative vision for ethical use of personal data. It’s also a movement and a community, and a global non-profit organisation. Read more here: mydata.org

OwnYourData and the MyData community share the same values for a just, sustainable and prosperous digital society. See the OwnYourData Mission Statement for more information, and please consider supporting the MyData movement. If you have any suggestions please don't hesitate to contact me at mdwd(at)ownyourdata.eu.


Noteworthy Information
Book: The Smart Enough City  show on Slack
John W.  

Why technology is not an end in itself, and how cities can be “smart enough,” using technology to promote democracy and equity.

HHS publishes final regs on info blocking, interoperability  show on Slack
Isabelle de Zegher  

The U.S. Department of Health and Human Services has finalized two long-awaited sets of rules that will govern how providers, payers and technology vendors must design their systems to give patients safe and secure access to their digital health data.

My Data, My Terms: A Proposal for Personal Data Use Licenses  show on Slack
sierla  

In this paper, we propose the creation of a system of personal data licenses that will help individuals determine conditions for granting access to their personal data.

Operator Design Questions  show on Slack
apoikola  

It is of limited value to discuss building blocks and reference models of operators in an abstract way. As a way forward, we would like to focus on a number of design questions that touch upon technical, legal, business and societal perspectives. the discussion should clarify how operators can and should adhere to the MyData principles.

MyData and Coronavirus  show on Slack
Iain  

Some thoughts here about how bottom up, human-centric 'MyData' would vastly improve how global pandemics can be managed for all parties. Clearly we won't get to build much for this time around, albeit my prototype only took 20 minutes; but one has to assume there will be a Covid 20 and beyond.

Report: Out of Control  show on Slack
Henrik Biering  

A recent extensive whitepaper from the Norwegian Consumer Council that demonstrates the need for alternative ecosystems to connect merchants with consumers.

MyData Webinar #6: Interoperability of Health Data  show on Slack
Sille  

The MyData webinar about Interoperability of Health Data (presented by Paul Knowles and Erwan Médy) moderated bei Ansku Tuomainen is now up at https://mydata.org/webinars and in MyData Global’s Youtube channel.

Controlling coronavirus with apps  show on Slack
Iain  

Smartphone tracking of the pandemic - a help or a threat to privacy?

The Status of the Sovrin Foundation  show on Slack
pknowles  

The recent economic climate has forced the Sovrin Foundation to make some changes to our operations.


Questions Asked
Topic Tracks for MyData European 2020 Conference  show on Slack
Sille  

We're preparing for the CfP launch for Europe 2020 conference next week, and drafting the topic tracks currently. We aim to give a palette of different topics that submitters can choose from, and elaborate these to concrete tracks later on:

  • Protection, (Cyber)security & empowerment combined
  • Data Governance - from ideas to reality
  • Data-driven cities - with and for whom?
  • Ethical/MyData AI for
  • Ethical alternative business models
  • What can Policy offer us?
  • Human-centric Verticals

Do you see something important missing? Do you see something as irrelevant to the current state of MyData and the discussions you'd like to see taking place in the European conference?


MyData Internals

Board & Steering Group

Community


Upcoming Events
The following events are in the MyData calendar for next week:

Statistics
1829 (13 new)
242 (31 monitored: ai-ethics, anewgovernance, board, cities, common_endpoints, community, community-meeting, decisions, design, done, economy, event-2020-europe, events-and-meetings, general, health-data, hub-initiators, identity, make-it-happen, media, my-ai, mydata-operators, mydata-presentations, policy, random, reading, startups, strategy, thank-you, tools, transparency, welcome)
3521
12 thanked 37