Bienvenue sur le MyData Weekly Digest, site d’actus sur la gestion des données personnelles, et notamment dans une approche “Human Centric” . Nous fournissons des informations récupérées principalement sur le MyData Global Slack Channel depuis juin 2019. Les publications et commentaires appartiennent à l'utilisateur de chaque entrée. MyData est à la fois une idée et une vision éthique de la donnée personnelle. C’est aussi un mouvement et une communauté, et une organisation mondiale à but non lucratif. En savoir plus ici: mydata.org

OwnYourData et la communauté MyData partagent les mêmes valeurs pour une société numérique juste, durable et prospère. Voir la Déclaration de mission OwnYourData pour plus d'informations, voir supporter le mouvement MyData. Si vous avez des suggestions, n’hésitez pas à me contacter à weekly-digest(at)ownyourdata.eu.


Information importante
1.2 Billion Records Found Exposed Online in a Single Server

Here's the next jumbo data leak, complete with Facebook, Twitter, and LinkedIn profiles.

Data Protection Laws of the World

Provides an overview of the key privacy and data protection laws and regulations across the globe.

VCs Align Around New Beliefs

Investment Tools to Reinforce a Better Data Economy That Puts People First. Read also “Venture Capital not just for maximum financial returns” by @j12t.

Version 2 of the Personal Data Internet (Video: 7:08min)

A video introducing V2 of the Personal Data Internet, aka MyData - by Julan Ranger from Digi.me.

Tools Overview Online

This is actually a summary post from a discussion on Slack of valuable online resources for recommended tools by @teemu.rpoonen, @John W., @Sille, and @Iain. Please also note that Tools is one of the focus topics in 2020 for MyData.

Additional MyData Bank Account at Osuuspankki

To make sure we have also a “normal” bank account (we’ve used the modern Holvi and Transferwise, but there are times they don’t work), proposing to set up a new bank account. This will not be our main account, but will be used when other accounts not usable, and for example for storing some cash reserve.

A New Governance Logo Design (continued)

Read this and subsequent posts to follow the discussion and development of a logo for aNG.

Leadership Election Results

Congratulations to @apoikola @Paul-Olivier Dehaye @Katryna Dow @Kristina (IBO) @John W. @madprime @Charlie - AfroLeadership @JulianRanger @Sarah for being elected to MyData Global Board.
Congratulations to @Chris @Ignasi Alcalde @Mehdi Medjaoui @Jsinipuro as new Steering Group members.

People-Centered Internet

This is a network we could look into. @Iain added: That group is led by Mei Lin Fung (based in California) and is already engaged with Project VRM and Me2B.

Quantified Life (Video: 13:17min)

I have always found this video about self tracking very well done as it also addresses privacy implications for individuals and society coming from this practice besides highlighting the opportunities.

MyData Design Checklist

I am working with Jogi for the Vake MyData Accelerator in Finland. Our aim is to bring the Design & User dimension to the core of the solutions the participating companies are developing. In an effort to give useful tools to implement MyData principles, I have started to draft a 'MyData Design Checklist'. This is the very first rough draft, and I would be very thankful for any feedback. And if you have worked on something similar, please do share your experiences.

What’s a Digital Bill of Rights Without Enforcement?

Google and Facebook are backers of the Contract for the Web, which lists privacy as a core principle. But the companies continue to slurp up user data.

Election Statistics

I did some quick data-crunching yesterday on the election data, you can find it in the attached excel.

This is how we evolve digital trust with MyData

From MyData ideology to practice of self-sovereign identity.

Society 5.0: Japan’s plan to take civilization to the next level

You’ve heard of Web 2.0 and perhaps even the Web 3.0 that browser maker Opera loves talking about. But have you ever heard of Society 5.0, much less the previous versions that came before it?

Finland Leads The Way In The Secondary Use Of Health And Social Care Data (Podcast: 5:19min)

Medical data are considered particularly sensitive personal information. Laws and regulations in most countries, including the USA and throughout Europe, generally aim to restrict sharing such information with the target of building privacy walls around each person’s data. But making such health data available more broadly is key to improved medical care, research and the advance of health science. Finland is the first country known to have adopted an approach to allow third parties to access health data for the purposes of scientific research, drug and health technology development and knowledge-based management in social and health care.


Questions posées
European Data Protection Board: Request for Comments

The European Data Protection Board welcomes comments on the Guidelines 4/2019 on Article 25 Data Protection by Design and by Default.

Is there a formal connection between MyData and Contract-for-the-Web?

Sir Tim was much in the news over the weekend, and it prompts me to ask if there's any formal connection between MyData and his contractfortheweb.org? @Iain mentioned that not all organizations are happy to endorse the contract and @Henrik Biering referred to an earlier discussion on Slack.

Proposal for Governance of Collaborative Processes

I think some combination of the board, the steering group and the GM should aim to get three structured tracks going for Request for Comments, Call for Proposals and MyData Enhancement Proposals. This of course mirrors in process the way many technical communities structure themselves, with the hope of tapping more effectively into the diverse skills of the community, without having to “ask for permission”.


outils
Ciitizen

A startup that “helps you collect, summarize, and share your medical records digitally”, focusing on cancer patients. Just be aware that one investor is Google/Alphabet’s Verily which says it “develops tools and devices to collect, organize and activate health data”.


MyData interne

This week the results from the leadership elections where announced. The November MyData monthly newsletter is out. In Seoul the MyData 2019 conference organised by Korea Data Agency and Ministry of Science and ICT took place. And @Casandra started to prepare an article for the European Medical Writers Association.


Evènements à venir
Les évènements suivants sont dans le MyData calendar de la semaine prochaine:

Statistique
1647 (28 new)
218 (34 monitoré: ai-ethics, anewgovernance, board, cities, community, conference-2019, conference-programme, decisions, design, done, economy, general, health-data, hub-initiators, human-centric, ihan, interoperability, make-it-happen, mapping, media, my-ai, mydata-operators, mydata-volunteers, mydata-wild-ideas, new-digital-rights, random, reading, startups, strategy, thank-you, tools, transparency, visionofsuccess2022, welcome)
2708
13 remercié 31