Welcome to the MyData Weekly Digest, a news site dedicated to producing the best coverage from within the human centred approach in personal data management. It provides information retrieved mainly from the MyData Global Slack Channel since June 2019. Postings and comments are owned by the respective user stated with each entry. MyData is an idea and an alternative vision for ethical use of personal data. It’s also a movement and a community, and a global non-profit organisation. Read more here: mydata.org

OwnYourData and the MyData community share the same values for a just, sustainable and prosperous digital society. See the OwnYourData Mission Statement for more information, and please consider supporting the MyData movement. If you have any suggestions please don't hesitate to contact me at weekly-digest(at)ownyourdata.eu.


Noteworthy Information
[Advanced] Digital Service Act

The Digital Services Act (DSA) is a proposed package of two regulations announced on December 15th, 2020 by the European Commission. The other framework is called Digital Market Act (DMA). Its expressed purpose is to update the European Union's legal framework, in particular by modernising the e-Commerce Directive adopted in 2000. In practice, this will mean new legislation regarding illegal content, transparent advertising and disinformation. (from Wikipedia)

[Intermediate] Principles of SSI - Sovrin

These foundational principles of SSI (available in 15 languages) are intended for use by any digital identity ecosystem. Any organization is welcomed to incorporate these principles into its digital identity ecosystem governance framework provided they are included in their entirety. The principles of SSI shall be limited only by official laws and regulations that apply in a relevant jurisdiction.

[Advanced] India National Digital Health Mission: Health Data Management Policy

In a first, India #healthIT regs mandate Separation of Concerns (#APIneutrality) between processors and patient-directed controllers.

[Advanced] Interoperability Guide - ID Proofing and Authentication

The OIX Interoperability Guide provides ‘how to’ guidance for anyone interested in assessing how different identity ecosystems interact. It sets out a clear, adaptable approach to assessing interoperability of identity proofing and authentication carried out in different regional or national trust frameworks.

[Simple] Vaccination Campaign at Nursing Homes Faces Obstacles and Confusion

Walgreens and CVS staff will soon begin vaccinations at tens of thousands of long-term care facilities. Some staff and residents are wary, and there are thorny issues of consent.

[Advanced] Healthchain: A novel framework on privacy preservation of electronic health records using blockchain technology

The privacy of Electronic Health Records (EHRs) is facing a major hurdle with outsourcing private health data in the cloud as there exists danger of leaking health information to unauthorized parties. In fact, EHRs are stored on centralized databases that increases the security risk footprint and requires trust in a single authority which cannot effectively protect data from internal attacks. This research focuses on ensuring the patient privacy and data security while sharing the sensitive data across same or different organisations as well as healthcare providers in a distributed environment.


Questions Asked
[Advanced] Funding call: moving data trusts from theory to practice

The Data Trusts Initiative is an interdisciplinary programme that pursues research at the interface of technology, policy and the law to better understand the role data trusts can play in addressing the challenges of data governance in the 21st century. As part of its work, the Initiative – which is supported by a donation from the Patrick J McGovern Foundation – is offering research grants for projects that can help bridge the gap between discussions about the potential of data trusts and their practical application.


MyData Internals

Board and Steering Group

Community


Statistics
2495 (23 new)
290 (38 monitored: academic-research, ai-ethics, anewgovernance, board, cities, common_endpoints, communications, community, community-meeting, coronadata, coronavalues, data_literacy, decisions, design, done, economy, event-2020-europe, events-and-meetings, general, health-data, hubs, identity, make-it-happen, media, my-ai, mydata-4-pandemics, mydata-operators, mydata-presentations, policy, random, reading, startups, steering-group, strategy, thank-you, tools, transparency, welcome)
2495
20 thanked 62