Interessante Informationen
[Simple] NHS data strategy: Patients will get more control over data

NHS patients in England will get greater control over their health and social care data under plans set out by the government. Critics fear data could be misused but the health secretary says a new strategy will make it more secure.

[Simple] AI start-up potted Coronavirus before anyone else had a clue

On December 30, 2019, BlueDot, a Toronto-based startup that uses a platform built around artificial intelligence, machine learning and big data to track and predict the outbreak and spread of infectious diseases, alerted its private sector and government clients about a cluster of “unusual pneumonia” cases happening around a market in Wuhan, China.

[Simple] The UK Has a Plan for a New ‘Pandemic Radar’ System

Disease surveillance schemes to catch the next rising virus already exist—they’re just not communicating with each other.

[Simple] Privacy group targets website 'cookie terror'

Noyb, headed by well-known Austrian privacy advocate Max Schrems, is targeting companies which it says deliberately make it hard to opt-out of tracking cookies.

[Simple] Facebook v Apple: The ad tracking row heats up

A new feature is being introduced to iPhones and iPads this week which is causing a huge rift between Apple and Facebook: It will allow device users to say no to having their data collected by apps.

[Intermediate] World Development Report 2021: Data for Better Lives

Data is a powerful weapon in the fight against poverty—one that can potentially transform the lives of poor people. But it’s also a double-edged sword. New rules of the road are called for—a social contract for data—to get more value out of data while protecting people against harm and ensuring access and representation.

Relatório de Desenvolvimento Mundial 2021: Dados para Vidas Melhores

Os dados são uma arma poderosa na luta contra a pobreza, podendo potencialmente transformar as vidas das pessoas pobres. Mas trata-se também de uma faca de dois gumes. Tornam-se necessárias novas regras - um contrato social para os dados - para que se possa extrair mais valor dos dados ao mesmo tempo em que se proteja as pessoas contra danos e se garanta acessibilidade e representação.

Como o Ocidente Perdeu para o COVID

Como tantos países ricos o trataram de forma tão errada? E como outros o trataram tão corretamente?

[Simple] How the West Lost COVID

How did so many rich countries get it so wrong? How did others get it so right?

Apoiados pelo Google, epidemiologistas lançam uma abrangente plataforma de dados sobre o COVID-19 

A Global.health permite o acesso aberto a mais de 5 milhões de registros anônimos sobre o Covid-19 em 160 países. Cade registro poder conter dúzias de informações sobre o caso, incluindo demográficos, históricos de viagem, datas de testes e resultados. 

[Simple] Backed by Google, epidemiologists launch a sweeping Covid-19 data platform

Global.health enables open access to more than 5 million anonymized Covid-19 records from 160 countries. Each record can contain dozens of data points about the case, including demographics, travel history, testing dates, and outcomes.

[Simple] Backed by Google, epidemiologists launch a sweeping Covid-19 data platform

Global.health enables open access to more than 5 million anonymized Covid-19 records from 160 countries. Each record can contain dozens of data points about the case, including demographics, travel history, testing dates, and outcomes.

[Intermediário] A Lei de Governança de Dados da UE apenas parte do quebra-cabeça de compartilhamento de dados

A proposta da nova Lei de Governança de Dados da UE (DGA) é um passo positivo para permitir a inovação baseada em dados. Ele tem o potencial de revolucionar o compartilhamento de dados entre organizações para o benefício das empresas e da sociedade em geral.

[Intermediate] The EU's Data Governance Act just part of data sharing puzzle

The proposed new EU Data Governance Act (DGA) is a positive step towards to enabling data-driven innovation. It has the potential to revolutionise data sharing between organisations to the benefit of businesses and society more generally.

[Simple] What if people controlled their own health data?

The NHS in 2030 project imagines a world where citizens are able to easily share their health data in a standardised format and in real-time with studies operating on a large or a small-scale.

[Simples] E se as pessoas controlassem seus próprios dados de saúde?

O projeto NHS in 2030 imagina um mundo onde os cidadãos possam compartilhar facilmente seus dados de saúde em um formato padronizado e em tempo real com estudos operando em grande ou pequena escala.

Slack foi vendido para a gigante do software empresarial por US $ 27,7 bilhões

A Salesforce concordou em comprar o aplicativo de mensagens no local de trabalho Slack por US $ 27,7 bilhões (€ 22,3 bilhões), no que seria uma das maiores fusões de tecnologia dos últimos anos.

Slack sold to business software giant for $27.7bn

Salesforce has agreed to buy workplace messaging app Slack for $27.7bn (€22.3bn) in what would be one of the biggest tech mergers in recent years.

Slack、ビジネスソフトウェア大手に277億ドルで売却

Salesforce has agreed to buy workplace messaging app Slack for $27.7bn (€22.3bn) in what would be one of the biggest tech mergers in recent years.

Covid-19: China pressiona por sistema global de viagens baseado em código QR

O presidente chinês, Xi Jinping, pediu um "mecanismo global" que usaria códigos QR para facilitar as viagens internacionais. Os códigos serão usados ​​para ajudar a estabelecer o estado de saúde do viajante. Mas os defensores dos direitos humanos alertam que os códigos podem ser usados ​​para "monitoramento político mais amplo e exclusão".

Covid-19: China pushes for QR code based global travel system

Chinese President Xi Jinping has called for a "global mechanism" that would use QR codes to open up international travel. The codes will be used to help establish a traveller's health status. But Human Rights advocates warn that the codes could be used for "broader political monitoring and exclusion".

Data Feminism

Catherine D’Ignazio and Lauren Klein spoke with Fernanda Viégas and Martin Wattenberg about their new book, Data Feminism.

Feminismo de dados

Catherine D'Ignazio e Lauren Klein conversaram com Fernanda Viégas e Martin Wattenberg sobre seu novo livro, Data Feminism.

The Coming Battle for Customer Information

A vintage article from 1997 about personal data in HBR: "As consumers take control of information about themselves, companies will have to pay for it."

A próxima batalha pelas informações do cliente

Um artigo antigo de 1997 sobre dados pessoais na HBR: "À medida que os consumidores assumem o controle das informações sobre si mesmos, as empresas terão de pagar por isso."

ICO takes enforcement action against Experian after data broking investigation

The Information Commissioner’s Office (ICO) orders the credit reference agency Experian Limited to make fundamental changes to how it handles people’s personal data within its direct marketing services. The enforcement notice follows a two-year investigation by the ICO into how Experian, Equifax and TransUnion used personal data within their data broking businesses for direct marketing purposes.

ICO toma medidas contra a Experian após investigação de corretagem de dados

O Information Commissioner’s Office (ICO) ordena que a agência de referência de crédito Experian Limited faça mudanças fundamentais na forma como trata os dados pessoais das pessoas em seus serviços de marketing direto. O aviso de execução segue uma investigação de dois anos pela ICO sobre como Experian, Equifax e TransUnion usaram dados pessoais em seus negócios de corretagem de dados para fins de marketing direto.

Ornstein: Players to sue for hundreds of millions over use of their statistics

Lawsuit over the ownership of personal statistics and tracking data. Hundreds of Enlglish football players are taking legal action over the use of their performance and tracking data without consent or compensation.

Ornstein: jogadores processam a empresa em centenas de milhões pelo uso de suas estatísticas

Centenas de jogadores de futebol ingleses estão tomando medidas legais pelo uso de dados sobre seu desempenho e rastreamento sem consentimento ou compensação.

試合中のデータを無断利用されたとスポーツ選手たちが企業に対して集団訴訟の構え

プレミアリーグやEFL、ナショナルリーグなどに所属する、400名以上の現役および元選手たちが、同意なく試合中のトラッキングデータなどを利用されたとして、ゲーム企業やデータ処理企業を訴える模様です。損害賠償が認められるとその額は数億ポンドとも。

The great coronavirus-tracing apps mystery

Germany and Switzerland are not sure how well their apps are working as the data is out of bounds.

コロナウイルス追跡アプリの大いなる謎

人口8300万人の約20%の国民が、非中央集権型(decentralised)の接触確認アプリをインストールしているといわれるドイツ。しかし、偽陽性と偽陰性の算出やアプリの効果測定に必要なデータはプライバシーに関わるために、アプリがインストールされたデバイスに匿名化されて蓄積されています。第三者によるアクセス権限の範囲外にあるため、それらのデータは参照できず、アプリがどの程度うまく機能しているかは、実は誰にもわかりません。スイスなどでも似たような状況にあります。

O grande mistério dos aplicativos de rastreamento de coronavírus

A Alemanha e a Suíça não sabem ao certo como seus aplicativos estão funcionando, pois os dados estão fora dos limites.

Relationships and Identity

A great post from Phil Windley on the importance of Self Sovereign/ Decentralised Identity in forming better digital relationships than we have at present.

Relacionamentos e Identidades

Um ótimo post de Phil Windley sobre a importância da auto-soberania / identidade descentralizada na formação de relacionamentos digitais melhores do que temos atualmente.

デジタル空間における人とのつながりとアイデンティティー

デジタルアイデンティティーとは、人と人の関係性を形作るためにあるもので、単に個人を識別するためのものではない---。Self Severign Identity(SSI:セルフソヴリンアイデンティティー)および、Decentralised Indetity(DID:分散型ID)の重要性を記した Phil Windley さんの素晴らしい投稿です。

UK virus-tracing app switches to Google-Apple model

The Apple-Google design has been promoted as being more privacy-centric.

Aplicativo de rastreamento de vírus do Reino Unido muda para o modelo Google-Apple

O design Apple-Google foi promovido como sendo mais centrado na privacidade.

Controlling coronavirus with apps

Smartphone tracking of the pandemic - a help or a threat to privacy?

MyData and Coronavirus

Some thoughts here about how bottom up, human-centric 'MyData' would vastly improve how global pandemics can be managed for all parties. Clearly we won't get to build much for this time around, albeit my prototype only took 20 minutes; but one has to assume there will be a Covid 20 and beyond.

Defining ‘My Data’ Portability and Interoperability

Iain has written up some thoughts on how to make practical progress on data portability and data inter-operability; he’s happy to discuss further in Amsterdam. The short version is that this work will require getting right down into the data weeds.

Finland is winning the war on fake news. Other nations want the blueprint

Russia's neighbor has developed a plan for countering misinformation. Can it be exported to the rest of the world?

Emotion-detecting tech ’must be restricted by law’

A US-based AI institute says that the science behind the technology rests on “shaky foundations”.

It’s Time to Start Talking About Co-managed Data

As we reach the end of another decade, I've been reflecting on the changes over the last ten years in my areas of interest - customer management as my day job, and personal data management for individuals as my hobby horse.

Google chief: I'd disclose smart speakers before guests enter my home

Rick Osterloh suggests house guests have the right to know smart speakers are in use before entering.

VRM Development Work

A comprehensive list of Vendor Relationship Management tools - albeit it probably needs some pruning as some are no longer active.

Updated MyData Eco-system View

For info, I have improved the 'big eco-system diagram' I posted a a few weeks back.

A MyData Eco-system View

I was thinking about the many different components required to create a data eco-system that genuinely enables individuals and came up with the diagram described on my blog.

Launch of the Global Citizen Foundation

A foundation similar to MyData with the goal to develop digital competencies within our society, define the values that we all want to see, and work towards a digital sovereignty.

Update report into adtech and real time bidding

An interesting development shared by the UK Information Commissioner.


Gestellte Fragen
MyData in the Time of Coronavirus

Is there a story to be told about how MyData type capabilities would help in the situation we find ourselves with Coronavirus? I'm not suggesting an immediate source of help; my question is more generic about downstream similar outbreaks and alternate medical emergencies. It seems to me that the current model can only be top down, and thus finding current and future victims is like finding a needle in a haystack. With strong identity and data management capabilities on the side of the individual then individuals could self-assert positive or negative claims, verified where possible and there would therefore be a solid bottom up source of data to help the top down flow. And then of course there could be new methods of analysis and prediction driven by MyData data flows over time. Thoughts from the group?


Tools
Tru.net

The private beta launch of Tru.net; a social publishing platform built on top of the JLINC protocol. Tru is a MyData Operator so has built in respect for personal data, along with high end management and visibility of the provenance of content.