Bienvenue sur le MyData Weekly Digest, site d’actus sur la gestion des données personnelles, et notamment dans une approche “Human Centric” . Nous fournissons des informations récupérées principalement sur le MyData Global Slack Channel depuis juin 2019. Les publications et commentaires appartiennent à l'utilisateur de chaque entrée. MyData est à la fois une idée et une vision éthique de la donnée personnelle. C’est aussi un mouvement et une communauté, et une organisation mondiale à but non lucratif. En savoir plus ici: mydata.org

OwnYourData et la communauté MyData partagent les mêmes valeurs pour une société numérique juste, durable et prospère. Voir la Déclaration de mission OwnYourData pour plus d'informations, voir supporter le mouvement MyData. Si vous avez des suggestions, n’hésitez pas à me contacter à weekly-digest(at)ownyourdata.eu.


Information importante
Facebook’s Privacy Tool Launched Months Ago. Or Did It?

Despite promising access, Facebook’s “clear history” tool is MIA for most of the United States, with no clear release date.

Declaration from Living-in.eu

Declaration on joining forces to boost sustainable digital transformation in cities and communities in the EU: We, decision makers at all levels of government together with organisations and networks of cities and communities of all sizes1, believe that strong cooperation through multi-level governance in the EU and co-creation with citizens are key to our mission of turning our cities and communities into smart and sustainable places where people enjoy living and working.

MyData & A New Governance Forum Session at IGF 2019 (Video: 2:26h)

The recording from the MyData & A New Governance Forum session at IGF 2019 in Berlin is now available.

MyData Community - what is it all about?

We conducted tens of community interviews in the past half a year with the main goal to understand the MyData community better. We’ve now finalised with the analysis, and results are available at https://mydata-global.org/understanding-community-2019.

Commerce in Data and the Dynamically Limited Alienability Rule

Commerce in some data is, and should be, limited by the law because some data embody values and interests (in particular, human dignity) that may be detrimentally affected by trade. In this article, drawing on the Roman law principles regarding res extra commercium, we investigate the example of personal data as regulated under the EU Charter and the GDPR. We observe that transactions in personal data are not forbidden but subject to what we call a dynamically limited alienability rule. This rule is based on two dynamic variables: the nature of data and the legal basis for commercially trading such data (at primary or secondary level).

Silicon Valley Is Listening to Your Most Intimate Moments

This is a great piece of reporting on what we've all known all along with voice activated devices. This time calling the contractors involved in listening to conversations.

Checklist for safe and responsible digital health research

My colleague Camille Nebeker at UCSD specializes in ethics with digital health – she's developed a checklist for “safe and responsible digital health research” - it's private but you can request a copy.

Meetup Usage

Currently, the MyData Global Meetup account has 12 groups with 1,144 members and held 46 events in 2019. The overall cost for this was EUR 1,317. Costwise this is not much but there is a discussion to switch to alternatives (allevents.in, eventbrite.com, or attending.io) because of low attendance despite high sign-ups. It is planned to take a decision in the next Community call on Wed Dec 18, 2019.


Questions posées
Standards for MyData Data Models

Who knows best about the status of standards for MyData data model(s) and about any existing open standards? Inputs so far are about Data Types from @harrihoo, the Kantara initiative from @Lal Chandran, and the JLINC Lab from @Iain.

Hubs/Groups Summaries 2019

Hub-Initiators, please take the time to reflect back and share your comments on the planned actions, share insights what worked / didn’t work and why, and what you’d like to take up next year.

MyData Glosary

Is there somewhere a glossary of terms for MyData? I think it is absolutely necessary to have clarity on terminology (as some of you already pointed out in the comments to the design checklist), so I am planning to make a MyData and Design glossary for the accelerator. @Iain responds with a pointer to a similar task at the Me2B Alliance.


MyData interne

The board is currently in transition from the outgoing members to new members and there was some discussion to share advice and experiences, including a reference to the Policy Governance Model for non-profit organizations and the ongoing debate about the tool landscape.


Evènements à venir
Les évènements suivants sont dans le MyData calendar de la semaine prochaine:

Statistique
1674 (11 new)
220 (34 monitoré: ai-ethics, anewgovernance, board, cities, community, conference-2019, conference-programme, decisions, design, done, economy, general, health-data, hub-initiators, human-centric, ihan, interoperability, make-it-happen, mapping, media, my-ai, mydata-operators, mydata-volunteers, mydata-wild-ideas, new-digital-rights, random, reading, startups, strategy, thank-you, tools, transparency, visionofsuccess2022, welcome)
2733
11 remercié 42