This week Google and the big Catholic health system Ascension inked a deal where all patient data in Ascension’s possession will be shared with The GOOG. This little data swap is called Project Nightingale. The song of this particular nightingale ain’t so sweet.

This presentation is a great visualization of the different types of all current hubs.

If you missed the AGM but would like to hear / see the presentations and discussions about motions put up at the GM, you can view the meeting in this video.

A recommendation of privacy-friendly apps for use with iPhones and iPads.

How to reinvent the internet’s broken data ecosystem and put users back in control.

If you are annoyed on Slack about too many notifications you are not alone! This thread discussed if it is necessary to establish guidelines to use @channel/@here. For immediate relieve @Sille described a way to turn off all notifications and @Viivi explained how to mute only @channel/@here.

The MyData Africa Conference will be organized during the International Open Data Conference in Nairobi 18-20 November 2020.

The first open healthcare protocol for the secure and private exchange of medical data.

Digi.me was running a Twitter chat on the history of health record access using the hashtag #HealthRecordAccess. The infographic shows statements from UK politicians in the last 30 years.

The #2 MyData Webinar about Design is now available at https://mydata.org/webinars/ and in our YouTube channel.

This week emails were sent out: “Datacoup is shutting down operations and will be decommissioning all of our servers. Any data you previously added to the platform was never sold. If you received payments in the past, they were coming from the Datacoup treasury account.”

One important thing to note is that security/privacy issues are not just about personal data, but also culturally sensitive data, commercially sensitive data or intelligence sensitive data. It’s also important to note that while I mention some indigenous issues in this article this is not intended to be a criticism or to be patronising to any indigenous groups: all of the issues raised are widespread among many other types of organisations and to individuals of any background.

Privacy advocates are concerned that the new law can paint an unsettling picture of people's movements in Quebec.

Solving the unintended consequences of platform economies. The OAN is a public infrastructure that creates a new design space for Open Applications.

There needs to be a radical transformation of Facebook and Google's surveillance business model as it poses a systemic threat to human rights.